Lybba launches collaborative clinical care network
Lybba staff descended on Cincinnati Children’s Hospital Medical Center this month to kick off a major NIH-funded initiative that could have profound impact on how clinicians, patients, and researchers treat and manage chronic illness.
Drs. Peter Margolis and Michel Seid assembled an open-source science team comprising more than twenty researchers, doctors, patients, scientists, technologists, and designers for the two-day event.
The purpose of the team’s effort is to study the health outcomes of use of a clinical collaborative care network (C3N), with Lybba serving as the backbone.
“We’re on a team with some of the most brilliant health-care innovators in the country,” said Jesse Dylan, Lybba’s founder. “This team is deeply experienced. But just as important, they care deeply about the viewpoints of patients and their families, who will guide our work every step of the way.”
This five-year initiative is funded primarily by the National Institutes of Health, as part of its novel TR-01 grant program. Initial participants in the C3N will include healthcare communities that take part in ImproveCareNow, a nationwide collaborative of pediatric gastrointestinal specialists already engaged in clinical care improvement practices.
Patients and their families will use a private version of Lybba to manage their health conditions and to communicate more effectively with one another and with their care teams. Doctors and other clinicians will use Lybba to exchange information about patient needs and clinical patterns pertaining to everything from diagnoses to treatments to outcomes. Researchers, in turn, will study whether such efforts result in improved health outcomes.
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Lybba comes at a good time in history. Holistic medicine, also known as integrative medicine, might now have a credible home where patients can discover the broad range of effective treatments that integrative medicine offers. I am a person with a chronic disease and have never been effectively treated by traditional doctors. I have been harmed by prescription drugs. I now see only doctors who practice integrative, non drug-based medicine and I finally have a life. Medical treatment should be designed for each patient based on each patient’s needs in a respectful and informative manner; something that traditional medicine dose not do. The use of drugs is uber-hyped and controlled by big pharma. Drugs have their place but they should not be a reflexive first choice. What patients really want is medicine that helps or cures an illness without killing or damaging the patient in the process. The prevention of disease is at the heart of integrative medicine and is all but ignored by traditional doctors because it reduces their profit margins. It is crucial for the well being of those who are ill that we shift the current medical paradigm. If patients confront their doctors and demand alternative treatments then maybe we can move the medical community toward patient-centered medical care. Thank you Mr. Dylan for this forum. I hope and pray that it is put to good use by both patients and doctors and broadens the conversation about integrative medicine that includes the voice of the person sitting on the exam table.
what a great idea, I’m an echocardiographer in the UK’s NHS.
I often work with patients that feel misinformed, or simply there options were not discussed or presented well. Social network sites like this can help provide information and informed patient treatment,
John Echo tech
A beautiful thing you’re doing. good luck
Good luck on your journey!